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Projeto: Project: 101183265 — JANE-2 — EU4H-2023-JA-3-IBA

Designação do projeto:	JANE-2 - Joint Action on Networks of Expertise on Cancer
Código do projeto:	Project: 101183265 — JANE-2 — EU4H-2023-JA-3-IBA
Instituição proponente/ Promotor líder/ Entidade coordenadora:	Fondazione IRCCS Istituto Nazionale dei Tumori
Parceiro(s) / Co-promotor(es) / Instituição(ões) participante(s):	AARHUS UNIVERSITET; ACADEMISCH ZIEKENHUIS GRONINGEN; ALLEANZA CONTRO IL CANCRO; ASOCIACIÓN INSTITUTO DE INVESTIGACIÓN EN SISTEMAS DE SALUDBIOSISTEMAK (BS); Azienda Ospedaliera Città della Salute e della Scienza di Torino; AZIENDA OSPEDALIERO-UNIVERSITARIA DI PARMA; AZIENDA UNITA SANITARIA LOCALE DI BOLOGNA; BUNDESMINISTERIUM FUER GESUNDHEIT; BUNDESZENTRALE FUR GESUNDHEITLICHE AUFKLARUNG; CENTRE FRANCOIS BACLESSE (CENTRE NATIONAL DE RADIOTHERAPIE); CENTRE HOSPITALIER DE LUXEMBOURG; CENTRE HOSPITALIER DU NORD; CENTRE HOSPITALIER EMILE MAYRISCH; Centro de Oncologia dos Açores Prof. Doutor José Conde; Centro di Riferimento Oncologico di Aviano; CHARITE - UNIVERSITAETSMEDIZIN BERLIN; CHILDREN'S HEALTH IRELAND; CLINIQUES UNIVERSITAIRES SAINT-LUC ASBL; CONSELLERIA DE SANIDAD GENERALITAT VALENCIANA; DEPARTMENT OF HEALTH (DoH); DEUTSCHE KREBSGESELLSCHAFT EV; DEUTSCHES KREBSFORSCHUNGSZENTRUM HEIDELBERG; EBG MEDAUSTRON GMBH; Ethniko Idryma Erevnon (NHRF); ETHNIKO KAI KAPODISTRIAKO PANEPISTIMIO ATHINON; Faculdade de Medicina da Universidade do Porto; FEDERATION HOSPITALIERE DE FRANCE; FONDATION EMILE MAYRICHCROIX ROUGE; FONDAZIONE CENTRO NAZIONALE DI ADROTERAPIA ONCOLOGICA; FONDAZIONE IRCCS SAN GERARDO DEI TINTORI DI MONZA; Fondazione Policlinico Universitario Agostino Gemelli IRCCS; French National Cancer Institute; FUNDACIO PRIVADA INSTITUT de INVESTIGACIO ONCOLOGICA DE VALL-HEBRON (VHIO); FUNDACION PARA LA FORMACION E INVESTIGACION DE LOS PROFESIONALES DE LASALUD DE EXTREMADURA FUNDESALUD; FUNDACION SECTOR PUBLICO ESTATAL CENTRO NACIONAL INVESTIGACIONES ONCOLOGICAS CARLOS III; HOSPITAL SANT JOAN DE DEU; HRS - HOPITAUX ROBERT SCHUMAN SA; HUS-YHTYMA (FICAN); Institut Català d'Oncologia; Institut Jules Bordet; INSTITUT NATIONAL DU CANCER (INC); INSTITUTIA MEDICO-SANITARA PUBLICA INSTITUTUL ONCOLOGIC (PMSI); Instituto de Investigação e Inovação em Saúde da Universidade do Porto; Instituto Português de Oncologia de Lisboa Francisco Gentil (IPO); Instituto Português de Oncologia do Porto; INSTITUTUL NATIONAL DE SANATATE PUBLICA (NIPH); INSTITUTUL ONCOLOGIC PROF DR ION CHIRICUTA CLUJ-NAPOCA; INSTYTUT BIOCHEMII I BIOFIZYKI POLSKIEJ AKADEMII NAUK; INSTYTUT GRUZLICY I CHOROB PLUC; IRCCS AZIENDA OSPEDALIERO- UNIVERSITARIA DI BOLOGNA; ISTITUTO GIANNINA GASLINI; ISTITUTO NAZIONALE TUMORI Fondazione Pascale; ISTITUTO ONCOLOGICO VENETO; Istituto Romagnolo per lo Studio dei Tumori "Dino Amadori" - IRST S.r.l.; KAROLINSKA INSTITUTET; KATHOLIEKE UNIVERSITEIT LEUVEN; KLINICKI BOLNICKI CENTAR SESTRE MILOSRDNICE USTANOVA (KBCSM); KLINICKI BOLNICKI CENTAR ZAGREB; LABORATOIRE NATIONAL DE SANTE; LANDSPITALI UNIVERSITY HOSPITAL (LANDSPITALI); LATVIJAS UNIVERSITATE; LIETUVOS RESPUBLIKOS SVEIKATOS APSAUGOS MINISTERIJA (SAM); LIETUVOS SVEITAKOS MOKSLU UNIVERSITETO LIGONINE KAUNO KLINIKOS; LUXEMBOURG INSTITUTE OF HEALTH; Masaryk Memorial Cancer Institute; MINISTERIE VAN VOLKSGEZONDHEID, WELZIJN EN SPORT (VWS); Ministério da Saúde - Direção Geral da Saúde; MINISTERU GHAS-SAHHA U L-ANZJANITA ATTIVA (MHA); MSB MEDICAL SCHOOL BERLIN GMBH; NACIONALINIS VEZIO INSTITUTAS; NACIONALNI INSTITUT ZA JAVNO ZDRAVJE; NARODOWY INSTYTUT ONKOLOGII IM. MARII SKLODOWSKIEJ-CURIE - PANSTWOWY INSTYTUT BADAWCZY; NARODOWY INSTYTUT ZDROWIA PUBLICZNEGO PZH - PANSTWOWY INSTYTUT BADAWCZY; NATIONAL ASSOCIATION OF GENERAL PRACTITIONERS IN BULGARIA; NATIONAL CANCER INSTITUTE (NCI); NEMZETI NEPEGESZSEGUGYI ES GYOGYSZERESZETI KOZPONT; OGKOLOGIKO KENTRO TRAPEZAS KYPROU; ONKOLOSKI INSTITUT LJUBLJANA (OIL); ORSZAGOS KORANYI PULMONOLOGIAI INTEZET; Orszagos Onkologiai Intezet (OOI); Oslo Universitetssykehus HF; PAULA STRADINA KLINISKA UNIVERSITATES SLIMNICA (PSCUH); REGION HOVEDSTADEN; REGION OSTERGOTLAND; REGION SJAELLAND (ZEALCO); REGION STOCKHOLM; REGION SYDDANMARK; REGION UPPSALA; RIGAS AUSTRUMU KLINISKA UNIVERSITATES SLIMNICA SIA; RIGAS STRADINA UNIVERSITATE; Royal College of Surgeons In Ireland; SAVMESTNA ONKOLOGICHNA NATSIONALNA MREZHA; Sciensano; SERVICIO ANDALUZ DE SALUD; SERVICIO EXTREMENO DE SALUD; SIHTASUTUS POHJA-EESTI REGIONAALHAIGLA; SOCIALSTYRELSEN (SOS); Sotsiaalministeerium (MSAE); STICHTING HET NEDERLANDS KANKER INSTITUUTANTONI VAN LEEUWENHOEK ZIEKENHUIS; STICHTING INTEGRAAL KANKERCENTRUM NEDERLAND; SVERIGES KOMMUNER OCH REGIONER; The Health Service Executive (HSE); UNICANCER; Unidade Local de Saúde de Santa Maria, E.P.E.; UNIVERSITA DEGLI STUDI DI MILANO; UNIVERSITAETSKLINIKUM ESSEN; UNIVERSITAETSKLINIKUM WUERZBURG - KLINIKUM DER BAYERISCHEN JULIUSMAXIMILIANS- UNIVERSITAT; UNIVERSITAIR ZIEKENHUIS ANTWERPEN; UNIVERSITATSKLINIKUM AUGSBURG; Universiteit Gent; UNIVERSITETSKA SPETSIALIZIRANA BOLNITSA ZA AKTIVNO LECHENIE PO ONKOLOGIYA EAD (USHATO); UNIVERZA V LJUBLJANI; UNIVERZITETNI KLINICNI CENTER LJUBLJANA; UNIVERZITETNI REHABILITACIJSKI INSTITUT REPUBLIKE SLOVENIJE-SOCA; UNIWERSYTET MEDYCZNY W LUBLINIE; VÄSTRA GÖTALANDSREGIONEN; VIB VZW; VIESOJI ISTAIGA VILNIAUS UNIVERSITETO LIGONINE SANTAROS KLINIKOS; VRIJE UNIVERSITEIT BRUSSEL; WARSZAWSKI UNIWERSYTET MEDYCZNY; YPOURGEIO YGEIAS (MOH); ZORGONDERZOEK NEDERLAND ZON
Data de início:	2024-11-01
Data de conclusão:	2028-10-31

Objetivos, atividades e resultados esperados/atingidos

The Joint Action on Networks of Expertise (JANE-2) is aimed at creating seven EU networks of a new kind, named "Networks of Expertise" (NoEs), in the cancer area, and allowing them to start fulfilling their mission. They will cover the following areas of interest:
1. complex and poor-prognosis cancers;
2. palliative care;
3. survivorship;
4. personalized primary/secondary prevention;
5. omic technologies;
6. hi-tech medical resources;
7. adolescents and young adults with cancer
These NoEs should provide services to the European cancer community, each of them focusing on its subject. These services may include, but will not be limited to, the following:
a) producing, or supporting, clinical practice guidelines and/or general recommendations for medical professionals, patients, the public;
b) raising public awareness and carrying out advocacy/policy actions;
c) developing healthcare organization models;
d) developing educational initiatives/tools for medical professionals and patients
e) undertaking efforts to promote research;
f) developing quality criteria for accreditation/endorsement mechanisms;
g) engaging patients and the public;
h) others.
Conceptually, therefore, NoEs will provide services to the cancer community, first to health care providers directly reaching out to patients. This is a difference in principle from other EU networks, such as European Reference Networks (ERNs) on rare cancers, which gather health care providers specializing in rare cancers, and the new Comprehensive Cancer Infrastructure Network (CCIN), which is made up of EU comprehensive cancer centres and their infrastructures. This also implies that NoEs should formally incorporate other entities in addition to health care providers, i.e. scientific and professional societies, patient advocacy groups, research institutes devoted to items such as molecular biology, public health, health economics, etc.
Based on the discussion already held in JANE, NoEs will be created within JANE-2, i.e. they will be built, and their activities will be funded in the first four years, through work packages (WPs) of JANE-2.
Undoubtedly, NoEs will have to find tools by which their members will be able to interact with their Member States (MSs), which also has implications for their sustainability. As long as they have to provide services, or coordinate service provision, at the EU level, NoEs should be made up of a relatively limited number
of partners having a European scope, or a coordination mandate at the national level, in such a way that they may behave as European networks of national/regional networks. In principle, the "high-contribution" partners within NoEs will have national representatives of MSs' infrastructures and/or coordinators or
domain/task leaders. On the other hand, "low-contributors" and "observers" will have the main task of conveying the whole European communities involved and/or the national communities. Of course, NoEs may be proactive in bringing about the creation of national/regional networks also building on JANE-2.
This means that, in addition to competent authorities and their affiliated entities participating in JANE-2, NoEs will also encompass partners to be selected in the future, called "collaborating stakeholders". When covering substantially different scopes within their mandate, NoEs will foresee different domains, each coordinated by a domain leader.
The wide range of objectives that NoEs will fulfil may bring about some degree of overlap with other EU networks (i.e. CCIN and ERNs), but also scientific and professional societies at the European and national level, patient advocacy groups, etc. An effort has been made within JANE to assure that areas of overlaps
may translate into synergies (by pursuing complementarity and avoiding different entities carrying out the same tasks).

In brief, networking is a great added value of European health care. NoEs will be an attempt to implement a completely new kind of networks. The challenge of JANE has been to try to envisage them; JANE-2 will build them and let them fly. Its ultimate goal is to make sure that, by the end of JANE-2, NoEs will be largely independent and at the same time able to collaborate with each other and with the other EU networks (CCIN, ERNs) and the whole European oncology community (including scientific/professional societies, patient advocacy groups, etc.).

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