How do we live with chronic disease?: a rights-based approach promoting the wellbeing of children with chronic disease

• Tipo: Artigo em Revista Científica Internacional
• Data: 2019

Autores

Sofia Castanheira Pais (Autor) FPCEUP; Isabel Menezes (Autor) FPCEUP

Revista

Título: Ciência & Saúde Coletiva

Vol. 24 Nº 10

Páginas: 3663-3672

ISSN: 1413-8123

Editora: Associacao Brasileira de Pos-Graduacao em Saude Coletiva

Indexação

ISI Web of Knowledge - 0 Citações

Scopus - 0 Citações

Projetos Associados

CIIE - Centro de Investigação e Intervenção Educativas

Outras Informações

ID Authenticus: P-00R-3YW

DOI: 10.1590/1413-812320182410.17932019

Abstract (EN): This paper focuses on the life experiences of children with chronic disease, a group whose invisibility involves particular challenges in their relationship with professionals in important life contexts, such as family, school and hospital. The study includes two complementary phases: i) Phase 1, composed of 15 interviews with parents, education and health professionals and two focus group discussions with children, and children and their mothers; and ii) Phase 2, which included self-report questionnaires administered to parents (n = 152) and children with chronic disease (n = 176). Based on a mixed methodology, this study combines quantitative and qualitative methods assuming that plural approaches allow for a deeper understanding of the life conditions of children with chronic disease and their families. The results reinforce the reproduction of social stereotypes and the tendency to focus on the individual ability to solve problems, which still remain to be circumscribed to the people's chronic disease sphere. Moreover, this paper reveals the central role that inclusive contexts have on children's wellbeing.

Idioma: Inglês

Tipo (Avaliação Docente): Científica

Nº de páginas: 10