Development of a family-based pulmonary rehabilitation programme: an exploratory study

• Type: Article in International Scientific Journal
• Date: 2015

Authors

Marques, A (Author) Other; Gabriel, R (Author) Other; Jacome, C (Author) Other; Cruz, J (Author) Other; Brooks, D (Author) Other; Figueiredo, D (Author) ICBAS

Journal

Title: Disability and Rehabilitation

Vol. 37

Pages: 1340-1346

ISSN: 0963-8288

Publisher: Taylor & Francis

Indexing

ISI Web of Knowledge - 22 Citations

Scopus - 22 Citations

Other information

Authenticus ID: P-00G-DS4

DOI: 10.3109/09638288.2014.964376

Abstract (EN): Purpose: This study explored the expectations of patients with chronic obstructive pulmonary disease (COPD) and family members about a family-based pulmonary rehabilitation (PR) programme; developed and implemented a family-based PR programme and explored the impacts of the intervention on patients and family members. Method: Patients with COPD and family members were interviewed. A family-based PR programme was designed. Patients' breathlessness, muscle strength, exercise tolerance, functional balance and health-related quality of life were collected pre/post-programme. Family coping and adjustment to illness were measured in patients and family members. Focus groups were conducted after the programme. Results: Patients (n=35; 69 +/- 10 years; FEV1 62 +/- 15% predicted) and family members (n=35; 57 +/- 12 years) had similar expectations/needs about a PR programme. Nine dyads participated. Patients' quadriceps strength, exercise tolerance and functional balance improved significantly (all p values <0.023). Patients and family members seem to use more positive coping behaviours (p = 0.026; p = 0.011). Patients (n=7; 78%) and family members (n = 8; 89%) considered having more knowledge about COPD and its management. Patients felt more functional (n=9; 100%) and reported their family members to be more active (n=3; 38%). In family members' perspective, their relationship with the care receiver was enhanced (n=2; 22%). Conclusions: PR programmes, if inclusive of family members, may enhance the skills of the whole family to manage COPD.

Language: English

Type (Professor's evaluation): Scientific

No. of pages: 7