Abstract (EN):
Purpose: The aim of this study was to describe the long-term functional impact of congenital diaphragmatic hernia repair on the survivors of a cohort of newborns. Methods: We analysed the multidisciplinary follow-up medical charts of 26 congenital diaphragmatic hernia survivors, treated at the Hospital de Sao Joao neonatal intensive care unit from January 1997 to December 2006. Results: The median age at follow-up was 51 (14-141) months. One (4%) patient had died by the age of three months old. Thirteen (50%) patients presented with at least one sequelae, six (23%) presented with two or more. Gastrointestinal problems were the most prevalent, with 6 (23%) children below the fifth percentile for weight and 3 (12%) with gastro-oesophageal reflux. Respiratory morbidity was present in 4 (15%) patients. Four (15%) patients exhibited neurological problems. No case of sensorineural hearing loss was diagnosed. Other findings included musculoskeletal anomalies (12%), recurrence of hernia (8%) and patch rejection (4%). Conclusion: Congenital diaphragmatic hernia survivors present with ongoing morbidities and mortality during infancy and childhood. They constitute a group of patients who require long-term regular follow-up in a multidisciplinary setting to provide adequate support and improve their quality of life.
Language:
English
Type (Professor's evaluation):
Scientific
No. of pages:
6