People first: a participatory community approach on patient-reported outcomes in tuberculosis

• Type: Article in International Scientific Journal
• Date: 2024

Authors

Martín, D (Author) Other; Barbosa, P (Author) Other; Ramos, JP (Author) Other; Vieira, M (Author) Other; Duarte R (Author) ICBAS

Journal

Title: Breathe

Vol. 20

ISSN: 1810-6838

Publisher: European Respiratory Society

Indexing

ISI Web of Knowledge - 0 Citations

Scopus - 0 Citations

Other information

Authenticus ID: P-010-5X5

DOI: 10.1183/20734735.0138-2023

Abstract (EN): Patient-reported outcomes (PROs) play a crucial role in understanding the impact of tuberculosis (TB) on both individuals and communities. Despite advances in TB treatment, conventional outcome definitions often overlook essential components of people with TB's experiences, leading to disparities in treatment understanding. The incorporation of PROs in TB scientific research can help bridge the gap between the health system and people's needs and expectations. PROs can offer valuable insights into non-observable constructs like health literacy, self-efficacy and overall wellbeing, contributing to the comprehensive assessment of diagnosis, treatment and research end-points. Participatory community approaches, such as Community-Based Participatory, emphasise the engagement and involvement of relevant stakeholders in designing interventions tailored to their needs. Key stakeholders, including healthcare professionals, researchers, clinical trial investigators, public health officials, and community health workers, TB survivors and people with TB, can play a vital role in promoting patient-centred care and engaging directly with the TB-affected community. An increased and cross-collaborative effort for the inclusion of PROs in TB research can entail their potential role in developing effective treatment regimens and promoting adherence, while maximising community engagement and improving outcomes for those affected by TB.

Language: English

Type (Professor's evaluation): Scientific

No. of pages: 5