INFORMED CONSENT FOR CASE REPORTS - AN ETHICAL PERSPECTIVE

• Type: Article in International Scientific Journal
• Date: 2017

Authors

Paulo Santos (Author) FMUP; Alberto Hespanhol (Author) FMUP

Journal

Title: Acta Bioethica

Vol. 23 No. 2

Pages: 271-278

ISSN: 0717-5906

Publisher: Universidad de Chile - Centro Interdisciplinario de Estudios en Bioetica

Indexing

ISI Web of Knowledge - 2 Citations

Scopus - 2 Citations

Other information

Authenticus ID: P-00N-7J7

DOI: 10.4067/s1726-569x2017000200271

Abstract (EN): The case report is a special type of scientific publication that focuses on a single patient, raising problems of confidentiality, as the exposure of the intimacy may facilitate identification of the participants. The legitimacy for the public disclosure derives from the informed consent, ensuring the preservation of patients' self-determination. In this article, we discuss aspects of autonomy as basic ethical principle, framing under the Portuguese Law. In the case reports, as in any clinical investigation, the will of the patient should prevail over the interests of research and researchers, even when he is unable to consent, like the minors, the disabled or the deceased, enforcing the legal rules and addressing to the active involvement of the guardians and the relatives.

Language: English

Type (Professor's evaluation): Scientific

No. of pages: 8