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Risk perception in subjects at-risk for Familial Amyloidotic Polyneuropathy

Title
Risk perception in subjects at-risk for Familial Amyloidotic Polyneuropathy
Type
Article in International Scientific Journal
Year
2017
Authors
Leite, A
(Author)
Other
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Dinis, MAP
(Author)
Other
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Sequeiros, J
(Author)
Other
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Constança Paúl
(Author)
ICBAS
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Journal
Vol. 16 No. 2
Final page: 1
ISSN: 1657-9267
Other information
Authenticus ID: P-00N-710
Abstract (EN): The aims of this study are to know if subjects at-risk were aware of their 50% risk for Familial Amyloidotic Polyneuropathy (FAP); to know the value of the subjective risk; to understand the association between sociodemographic characteristics and risk perception, and between the risk status and the subjective perception of risk. 174 subjects 50% at-risk for FAP were tested. 52.9% subjects at-risk were aware of their 50% risk condition. The mean value of the subjective risk was higher and closer to 50% when the subjects were aware of their 50% risk condition. Education was associated to a higher awareness of being at 50% risk. It seems that information on previous knowledge before performing the genetic counselling increases the subjective risk.
Language: English
Type (Professor's evaluation): Scientific
No. of pages: 9
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