The European competence network on mastocytosis (ECNM)

• Type: Article in International Scientific Journal
• Date: 2004

Authors

Valent, P (Author) Other; Arock, M (Author) Other; Bischoff, SC (Author) Other; Buhring, HJ (Author) Other; Brockow, K (Author) Other; Escribano, L (Author) Other; Fodinger, M (Author) Other; Grabbe, J (Author) Other; Hartmann, K (Author) Other; Henz, BM (Author) Other; Horny, HP (Author) Other; Kluin Nelemans, HC (Author) Other; Lima, M (Author) Other; Marone, G (Author) Other; Orfao, A (Author) Other; Parwaresch, RM (Author) Other; Sillaber, C (Author) Other; Sotlar, K (Author) Other; Sperr, WR (Author) Other; Triggiani, M (Author) Other; Van Doormaa, JJ (Author) Other; Wolff, K (Author) Other; Zuberbier, T (Author) Other

Journal

Title: Wiener Klinische Wochenschrift

Vol. 116

Pages: 647-651

ISSN: 0043-5325

Publisher: Springer Nature

Indexing

ISI Web of Knowledge - 15 Citations

Scopus - 11 Citations

Other information

Authenticus ID: P-000-81X

DOI: 10.1007/s00508-004-0253-3

Abstract (EN): The European Competence Network on Mastocytosis (ECNM) is a Europe-wide, multinational cooperative approach attempting to improve recognition, diagnosis, and therapy of mastocytosis. The network is composed of local centers, physicians, and scientists who have dedicated their work to patients with mastocytosis. However, because of the rarity and complexity of the disease, each single component in the network alone would fail to meet important demands and to reach solid conclusions in this field of applied medicine. The ECNM represents an attempt to overcome this restriction as a cooperative multicenter platform that should serve as an important basis for the development of new therapeutic strategies and diagnostic concepts, and for the standardization of techniques used to determine diagnostic and prognostic parameters. Moreover, using future central databases and registries, a suitable infrastructure for the development of co-operative multicenter clinical trials will be established. In addition, the ECNM is dedicated to provide the best available information about the disease to patients and physicians.

Language: English

Type (Professor's evaluation): Scientific

No. of pages: 5